THE SARCOIDOSIS MINORITY VIRTUAL FORUM FOR SOCIAL JUSTICE
Time & Location
About the Event
Promoting Physical and Mental Health and Community Relations for the Sarcoidosis Minority Community The National Sarcoidosis Online Support Group and Town of Brookhaven Councilwoman Valerie Cartright are hosting a Sarcoidosis Minority roundtable. National Sarcoidosis Online Support Group and Valerie Cartright are committed to improving the quality of life both physically and mentally for all Sarcoidosis community members. Due to the social injustice happening in the United States many Sarcoidosis patients are depressed, anxious and stressed. We are trying to help our community by showing them alternatives to protesting since the community can’t protest due to immune compromised systems and also to help them with controlling the mental and physical aspects that racial injustice is causing. On behalf of the National Sarcoidosis Online Support Group, a group run by patients for patients, and Town of Brookhaven Councilwoman Valerie Cartright, would like to thank you for your support for Sarcoidosis and racial injustice. Stress is very harmful for anybody, but for Sarcoidosis patients stress is deadly both physically and mentally. Sarcoidosis (pronounced SAR-COY-DOE-SIS) is an inflammatory disease characterized by the formation of granulomas—tiny clumps of inflammatory cells—in one or more organs of the body. When the immune system goes into overdrive and too many of these clumps form, they can interfere with an organ’s structure and function. When left unchecked, chronic inflammation can lead to fibrosis, which is the permanent scarring of organ tissue. This disorder affects the lungs in approximately 90% of cases, but it can affect almost any organ in the body. Despite increasing advances in research, Sarcoidosis remains difficult to diagnose with limited treatment options and no known cure. Disease presentation and severity varies widely among patients. In some cases, the disease goes away on its own. In others, the disease may not progress clinically but individuals will still suffer from some symptoms that challenge their quality of life. The rest of patients—up to a third of people diagnosed with the disease—will require long-term treatment. Sarcoidosis is considered chronic in people whose disease remains active for more than 2-5 years; in this population Sarcoidosis can be debilitating and life-threatening. Ethnicity plays an important role in Sarcoidosis epidemiology, disease presentation, and clinical outcomes. The reported disease incidence is five in 100,000 for Caucasians and 39 in 100,000 for African Americans.
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